Thursday, October 02, 2008

Dad's Not-So-Excellent Adventure


***** 5 Stars (Scariest Thing I've Seen In A Long Time)

( Many of you have written me, or called, during the last couple months, since we found out my father had Esophageal Cancer, asking how he was doing. Since we found out today he will be released from the hospital tomorrow, I thought I would do a Horror review on the last 5 weeks. If I called you guys, or responded to your e-mails, it would take 2 days to tell this epic one at a time. BTW: Fuck yeah, you better believe I want full credit for this review!)

To catch you up on the back-story (imagine this scrolling across the screen a la Star Wars). We found out about 3 months ago my father had a tumor in his esophagus. The good news is he was scheduled for an endoscope due to a long history of Acid Reflux, so the tumor was found before symptoms showed. Usually, once the symptoms (cough that won't go away, trouble swallowing) appear, there is little medicine can do to save the patient. Dad was seen by two of the top cancer hospitals in the world (Foxchase in Philly and Sloan in NYC) and the course of treatment was set at 1 week of chemo/radiation (in-patient), 3 weeks of radiation (out-patient), another round of both (in-patient), then a month of recuperation and finally a major thoracic surgery at Sloan to remove a piece of his esophagus. The expectation is this would completely cure him.

(OK, all caught up? Stay with me, 'cause this fucker is about to go off the rails, plus I get some funny one-liners in soon...)

Dad checks into the hospital on Monday, August 25th to begin his 1st round of Chemo and radiation. (That's right, I said August 25th and he is scheduled to get out tomorrow on October 3rd, it's called foreshadowing...see what I'm doing here?) That week was what you'd expect; he was tired and a little sick to his stomach. My daughter got to visit, and when I was visiting him, walking around the hallways of the Oncology ward, he told me that while she was there, the hospital brought in a women to play the harp. I stopped him with my arm, right in front of the nurses station, and asked "Dad, this is important. Were you the only one who could see the lady with the harp?" The nurses heard, and one spit her soda on the floor, and the others laughed out loud. Dad laughed so hard it caused a coughing fit. Walk over. Seriously though, a harp? On the Oncology floor? WTF?!

Saturday Dad is released, goes home, and promptly keels over unconscious that night. My stepmother couldn't wake him up, calls the ambulance, and they can't get a blood pressure. Not good. Unfortunately for Dad, they live in Podunk, it's Labor Day weekend, and the ambulance took him to the nearest hospital...Podunk Memorial. There, it is determined his kidneys have failed. We knew we were in trouble when one of the nurses said she had never seen the IV port that the Philly hospital had placed in Dad's vein for the chemo, and another nurse commented WHILE PLACING THE IV BAG, that she had never given anyone that much IV before and she wondered if it would cause Congestive Heart Failure. What? You say this to the patient and his wife?

Apparently, the doc at Philly had heard stories of Podunk Memorial, because he arrived at his office at 9am the Tuesday after Labor Day, and had written the orders to have Dad transferred to Philly by ambulance by 9:15am. Thank God.

In Philly it is determined that one of the drugs in the Chemo had caused Dad's kidneys to totally shut down, and the other drug had caused him to have Diabetes. I researched these drugs, and you have to scroll to the very bottom of the data sheets to find the "Extremely Rare, but Serious Side-Effects" line. That's right he got two drugs and contracted the rarest of side-effects from both. Over that week, he was given Dialysis to help the kidneys rest, and Insulin to treat the Diabetes, and Dad was wondering if we weren't going in the wrong direction.

Now, if a patient, especially a patient in his 60's is in the hospital for a long period of time, they give them Heparin (a blood thinner) to reduce the risk of blood clots. If you look up Heparin, it has very few side-effects, but at the bottom of the page, way down the bottom, is a paragraph titled "Extremely Rare, but Serious Side Effects". Yep, third medicine, third time. Turns out Heparin can do its job TOO well, lowing the Red-blood-Cell Platelets to the point where the White-blood Cells can clot. It has a long technical name, and the old boy got it. We are all called to the hospital, yet again, and told he would receive a blood transfusion the next day (Saturday). To which I comment to the doctor, "So he should have HIV by next Friday?". My brother and Dad laughed...the doctor not so much.

Three weeks pass, things get better. The drive to the hospital starts to run on Auto-pilot, and hospital coffee sucks. However, the kidneys come back, the radiation isn't causing any major problems. Hell, we're cooler than the other side of the pillow. We're like Jamie Lee Curtis after she kills old Mikey Myers, relieved that it's over. “Look behind you! He’s sitting up!”

Last week Round 2 of Chemo started on Tuesday, NOT the same drugs, totally different drugs. Very few side-effects, but down there at the bottom of the page...sigh.

I'm in Maine on business on Thursday. My territory runs from Maryland to Maine, so Portland is AS FAR FROM HOME AS I CAN GO ON BUSINESS. I'm an idiot. I get a call from my step-mom, crying. Dad's jaw hurt, that raised alarms with his Oncology nurse who ordered an EKG. EKG not normal, heart problems, Dad is moved to the Cardiac Intensive Care unit. The new Chemo drug has damaged his heart, causing Congestive Heart Failure.

I start driving the car, like I stole it, back from Maine. Only took 8 hours. The following day my uncle goes to the hospital to be with my step-mom, my wife goes to work, and I go to the Bus Station to pick up by brother and his wife who are coming in from NYC. My uncle calls, says, "I know you were going to come tomorrow, but I think both of you boys should come tonight." I call the wife, she comes home, we go to the hospital, not too worried, my uncle can be a little melodramatic.
Nope, not melodrama. Dad's heart went into A-fib. In laymen’s terms, the top portion of the heart was beating way to fast trying to pump blood, but since it was out of sync with the bottom, it was actually not moving any blood through the body. Medication didn't work, they had to put him under and shock the heart. The doctor asked my SM and uncle to come in and say goodbye, 'cause the shocking turns off the heart, they expect it to turn back on with the next shock...but...you know.

All right, I'm done. Hope you didn't pour coffee before starting this, because it's cold now. Dad's heart has improved with the discontinuation of the medicines, it appears the damage isn't permanent, and he will be released tomorrow. He can finally get out of the hospital bed for the first time in over 5 weeks. Now all we have to do is make it through the surgery. That's supposed to be the hard part of all this...

(Anybody want to deny me credit for this review? Huh? The fucking thing is a Novella!) Seriously, thanks for all the best wishes and thoughts guys, I appreciate it.

8 comments:

AC said...

miko, even though your review is well-written and your jokes are very funny indeed, i can't say i'm smiling. :( poor dad, and poor you! and poor everone else in the family. how awfully stressful and frightening. thanks for catching us up. i trust you'll let us know, blogwise or otherwise, if more impossibly-rare-but-deadly dad stuff comes up and how/if we can help.

more importantly, i vote miko gets credit for at least one film if not more.

Whirlygirl said...

What a story, Miko. I'm glad dad is improving after all that.

"To which I comment to the doctor, "So he should have HIV by next Friday?". My brother and Dad laughed...the doctor not so much."

Miko, I can't believe you said that. You are too much.

Landshark said...

Fucking A.

Catfreeek said...

My heart goes out to you and your family Miko.

I'm with ya Whirly at the very least 1 credit.

Octopunk said...

God, that all SUCKS. Every major drug-related hassle you could ask for? What the hell?

Damn. All my best wishes for the future.

DKC said...

I was really worried for a second that you were going to say he died and you hadn't told me!!

I am SO relieved to be wrong. Both desroc and I send our warm thoughts for you and your family. Really, things can only go up from here, right?

JPX said...

Miko, your ability to manage tremendous stress with such grace astounds me. I need you to be a motivational speaker for some of my patients.

miko564 said...

Thanks guys.

JPX, today officially marks the 1st day in my 38 years that anyone has used the word "grace" in a description of me or my actions...

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